Tuesday, March 8, 2011

Caleb update

For those of you that have been following the ongoing saga of trying to find out what is wrong my my little one I just wanted to give you an update.

We had an appointment with the specialist yesterday to talk about the findings of all of the tests so far. And while we were hoping for a definitive answer and diagnosis, instead we were just told that my son is an enigma. (Heck...I could have told you that without a dr.'s note!) She just doesn't really know what to do with him. The diagnosis is leaning towards celiac disease, but all of my son's tests seem to keep contradicting each other. One test will be a positive marker for celiac, while the next is a negative marker.

So we took him for some more blood tests yesterday afternoon. (And let me tell you that taking a toddler to get blood taken is a special kind of hell...and anyone that has even taken their child in for one will probably agree with me on it!) We should get a call from the doctor before the end of the week with those results, so for now we are in a holding pattern until we hear anything.

The best thing that has come out of all of these tests is the news that my son does not have Crohns disease. It's the one thing that both my husband and I have been worried about since this all began...my hubby has the disease and he was just sick thinking that he passed the gene onto my son. It was such a relief to get the news that it wasn't that disease causing the stomach problems for my son!

So here we stand...just waiting. And let me tell you that waiting sucks. Totally and completely sucks!

1 comment:

  1. I'm so glad your little one doesn't have Crohn's! Hang in there lady. The road to a diagnosis is tough. I had to deal with it on a personal level, but to have a child going through it must be twice as hard. Things will get better, I promise!

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